Monday, 10 December 2012

One Year on...!

Well, it's a year ago today that Ken and I were married, right here on Thetis Island.  What an amazing day!  Still can't believe that a year has gone by already - and what a year it's been!

As we prepared to get married, made plans, talked, prayed and made decisions, I knew we were beginning to build a great foundation.  Without dwelling on it, I couldn't help thinking that maybe God was helping us to build a strong foundation for a purpose... for a storm to come.

I guess He was.  In His faithfulness and all-knowing love, He saw the storm to come.  Thanks to Him and to the firm foundation we were able to build for our marriage, He has kept us in this storm; unshaken in faith, in love and in hope.  He is good!

Excited for many more years to come knowing that He'll draw us closer together and closer to Himself - whatever comes our way! 
: )

1 Thessalonians 5:25
"Faithful is He who calls you and He also will bring it to pass."

Saturday, 3 November 2012

November Appointment Update


Yesterday I had my appointment with the Internal Medicine Specialist.  All went well.  We're amazed at how open-minded he is, when, in the Lyme world, it can often take a long time to even find a doctor who's willing to treat for Lyme's Disease.  I know of someone who went through about 40 doctors and naturopathic doctors in her search to get well!

So, that's an answer to prayer in itself, for all of you who are praying for me.  Thank you.  We have 2 great doctors on our side!

I've now been on high dose antibiotic treatment for 2 months, with a couple of different concoctions, but we've yet to see much, if any improvement in my health and symptoms.  The Internist yesterday had been doing some research of his own and suggested we try a different antibiotic; one that we had been recommended by a Doctor in Germany that we're also in contact with.  It's one that better attacks later stage Lyme Disease and so I think it will be good to try something different, but I'm a little nervous.  This antibiotic can't be taken orally, and so I'll have to have it by IV every day.  Living on an island, my options of how we can do this are a little more complicated as a trip to the hospital each day would be about a 4 hour round trip!  So, I can have a small 3-4" line put into my forearm which would have to be changed every 4 days.  Or, I can choose to have an IV line running from my wrist and up into my heart.  This will only need to be changed every month or so and so I wouldn't have to make all those trips to the hospital.  We have a month to decide while I finish up the round of antibiotics I'm currently taking.  Please pray that we'd know the right option and that a new tactic of treatment will start to make some headway.  

On the plus side... he said he doesn't think it's necessary for me to have a spinal tap done as it won't really give us any new information.  Phew!  Dodged that one! :)

The Specialist also ordered some more blood tests for me to get checked for co-infections.  Ticks don't only carry Lyme's Disease but can carry a whole host of other bacterial infections too, called co-infections.  It will take about 3 weeks for the results to come in and so in the mean time... we're going on holidays!!  :)

Thanks for reading and for your thoughts and prayers.  As always, it's so good to know we have the support of friends and family all over the map... literally!!

Thursday, 25 October 2012

Marks of the amateur

"We are merely moving shadows, and all our busy rushing ends in nothing."  Psalm 39:6

"Busy rushing"... that's me!  These last few months of being off work and my body stopping me from being my usual can't-sit-still self, has been pretty tough.  It's so hard for me to be still and rest, even though I know in my head that that's what my body needs.  Add into the mix that I'm also trying to figure out how to be a wife, and you soon get the picture that there's certainly been some frustrating moments.  

Just recently I've been pushing it a bit and trying to do too much - and my body tells me about it!  I think God's trying to teach me something though, and so I'm choosing to prick up my ears and listen.  

"Being in a hurry.  Getting to the next thing without fulling entering the thing in front of me.  I cannot think of a single advantage I've ever gained from being in a hurry.  But a thousand broken and missed things, tens of thousands, lie in the wake of all the rushing... through all that haste I thought I was making up time.  It turns out I was throwing it away." - Mark Buchanan, The Rest of God: Restoring Your Soul by Restoring Your Sabbath.

This comes from a different book that I'm reading, but I think I'll be investing in Mark Buchanan's book very soon, as it sounds like I could have a lot to learn from his experiences! 

"On every level of life, from housework to heights of prayer, in all judgement and efforts to get things done, hurry and impatience are sure marks of the amateur."  - Evelyn Underhill

This amateur has begun training in what it means to slow down, be still and enjoy each moment.

Monday, 22 October 2012

Good Plans

Today, Ken pulled out my Sunflowers... Summer has ended!  It was a bit of a sad moment! : (  Here's my reminder of Summer and the flowers in all their glory:

I'm a planner by nature, so the fact that at the moment I can't plan one day from the next can be a little frustrating to say the least!  It all is teaching me that The One who makes my plans for me is to be trusted, and as hard as it is, I have to be ok with that and leave it in His hands. 

I'm reading a book at the moment called "Christ for Real" that's by Charles Price.  The students are writing a review on it at the moment and since I'll be reading a couple of them I thought I better bring myself up to speed!  Well, it's been food for my soul.  I wanted to share just a bit from it that I'm finding pretty appropriate right now.  I hope you can be encouraged by it wherever you're at too...
"God's plans may not always make us glad, but the are good!  His plans may not always seem pleasant, but they are perfect!  Paul describes the will of God as being "his good, pleasing and perfect will." (romans 12:2)  When we see it to be good we acknowledge it to be perfect, we will discover it to be pleasing.  Sometimes the plans of God have taken His people through pain and suffering as they have allowed themselves to be the means of His will being accomplished.  The Lord Jesus Himself went through agony as He ruthlessly carried out the will of His Father with no regard for His own comfort..."

"There is a price to pay for obedience.  It takes us to the front line of the battle with satan and his cohorts, and we are not exempt from danger, tears or pain.  But through it, beyond the immediate suffering, beyond the unanswered questions, beyond the pain of battle, there is good that God is accomplishing, and it is perfect, and when we see the whole picture, there will be no doubt that it is pleasing..."

"God is under no obligation to explain to you or to me what He is accomplishing with our lives.  Sometimes He will give a glimpse as He often did to people in Scripture, but otherwise there will be no explanations from heaven and we will "live by faith, not by sight." (2 Corinthians 5:7)"

Sunday, 21 October 2012

Pen to Paper

"Moving the ink across the page opens up the eyes, that he may understand how it sheds light focuses its lens..."there are eyes in pencils and in pens" " (John Piper, quoted in Ann Voskamp's One Thousand Gifts)

I love to journal.  A lot.  I write down thoughts and prayers (because I seem to have the attention span of a gnat when I pray, my mind wanders to groceries, laundry, birthdays, holidays...yeh!)  I write verses that strike a chord as I read my Bible so that I can look back on them.  It's so true that it helps shed light on things too.  Writing it down, somehow makes it clearer for me.  This blog is a bit like that.  

"If you think of this world as a place intended simply for our happiness, you find it quite intolerable: think of it as a place of training and correction and it's not so bad." - C.S Lewis, God in the dock

Now that's one to think on...

**Update: I've now been on the Lyme treatment for 6 weeks and have an appointment with my internist again at the beginning of November.  So far, not much change, but we're praying.  We're in contact with a Dr. in Germany too... they're way ahead of the game when it comes to Lyme.  He's recommended I get a spinal tap (ouch!) so I can get my spinal fluid tested for antibodies.  Not sure we'll be able to persuade our internist to refer us to a neurologist so that I can get that done, but we're going to try. Please pray that he'll have an open mind to that so that we might be able to get a few more answers.

Thanks for coming on this journey with us


Saturday, 20 October 2012

Are you sitting comfortably?...part 2 - The results

August 2012

After a mistake at the lab that drew my blood, we finally got my Lyme test results back from iGenix in the US.  It was positive.  We were pretty shocked.  My Naturopath said my results showed the strongest positive she's ever seen and when she called the lab technician at iGenix, she said it's one of the strongest positives she's seen in quite a while too.  

And so the journey began.  More research.  More Doctors.  More Medication.  But we were so thankful to have found what's going on with my body and to have a new direction to head in that will hopefully lead to bringing me back to full health.

Lyme Disease can be controversial and so we're counting our blessings in having more than one doctor that is willing to work with us in treating it.  A lot still rests on us to research and choose what we want to do as our doctors don't have a lot of experience in treating it for themselves.  There's a lot of positives and negatives to that!  

I'm definitely thankful to have a husband who loves to learn and loves to research and is putting those skills to good use right now on my behalf!  I'm also thankful to know that God is still in control, and knows exactly what He's doing, even if we don't!

Are you sitting comfortably?... part 1

...then I'll begin...
Grab yourself a cuppa, because for those of you who I haven't been in touch with a lot recently, I'm going to bring you up to speed.

So, to cut a long story short, here I am on Thetis Island in beautiful British Columbia, Canada.

(not bad... I know!)

We (Ken & I) got married, 10th December 2011 here at Capernwray Harbour.  We then jetted off on honeymoon to Hawaii, via Vancouver, and San Francisco and then on to England for Christmas with the fam.  


Needless to say, by the time we got to England, and under the wing of Mummy Dalring, it was time to rest and relax after a very hectic few months.  At first I thought it was just jetlag and exhaustion kicking in as I felt weak, dizzy, tired, nauseous...

Once we got back to Canada (a day late, thanks to lots of delays as we flew via London, San Francisco and Washinton DC back to Vancouver!) I still wasn't feeling 100%.  I seemed to keep getting ill and not really fully recovering.  After a trip to Manitoba for a conference and visiting Ken's family in February where I was ill for most of the time, we decided I better go to the Drs and get checked out. 

My first Drs visit, I got told I was just tired and stressed and to come back in 3 months time if things weren't getting any better!!  Thanks!  A few weeks later, things were getting worse and so a return trip to the Drs and 8 tubes of blood later, we found that I had vitamin B12 deficiency.  

Cue the needles!  ... Our on site nurse, kindly agreed to administer my B12 injections 3 times a week for about a month.  Nothing.  No improvement in energy levels and the muscle aches and sleep disturbances kept on coming... not to mention the night sweats!

In the mean time we decided to also see a naturopathic Dr to get another opinion.  We knew something wasn't right.  I'm a 6am rising, half marathon running, can't sit still 23 year old.  Conking out on the sofa for 2 hours every afternoon after half a day's work, isn't normal!  I can barely muster the energy to walk, never mind run!

The naturopath gave me some suggestions for eating better and ordered some more blood work suspecting a thyroid issue and burned out adrenal glands.

In the meantime, I was referred to an Internist by my family doctor as she was a little baffled as to what was going on.  

Fast forward a few months and both Internist and Naturopath diagnose that I have Chronic Fatigue/Fibromyalgia.  There's nothing to be done for either of those, just symptom management and waiting it out.  

We keep on checking in with both the Naturopath and the Internist and after researching for ourselves and discussing with our Naturopath, we decided to get me tested for Lyme's Disease.  My symptoms really matched with that and it's quite commonly miss-diagnosed as Chronic Fatigue Syndrome or Fibromyalgia.  I didn't remember getting a tick bite though (this is how Lyme is most commonly carried), and so we were really just testing to rule out the possibility.  And so we waited on the results...